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Patient Stories2019-06-25T14:25:43+00:00

Medicare’s coverage limit on anti-rejection drugs impacts thousands of kidney transplant patients across the country. These are their stories.

Edward Drake II

“If we can make a difference, why not?”

Edward received a kidney transplant in 2008, but lost coverage for immunosuppressive medications at age 26. Hear why Edward wants Medicare to honor the gift.

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Monica Fox

“All of a sudden, the rug is pulled out from under you.”

Monica received her kidney transplant on Thanksgiving Eve 2016 but lives every day knowing as of next winter, her coverage of immunosuppressive medications isn’t a guarantee. Listen to Monica’s story.

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Natalie and Mark Mirage

“I’m 16 and I have a lot of life to live.”

The relief of Natalie receiving her transplant in 2014 is overshadowed by the lack of guaranteed coverage for the immunosuppressive treatments she’ll need for the rest of her life. Watch Natalie and Mark discuss their fears and hopes for the future.

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Alexandra Harrison Flaxman

“Knowing that you’ll have your medications is just one less thing to worry about.”

Alexandra is living proof that the availability of private insurance alone cannot guarantee coverage for immunosuppressive medications. Knowing that their lifesaving anti-rejection medications are covered would give kidney transplant patients like Alexandra, “one less thing to worry about.”

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Mary Baliker

“My medications all went on a credit card because they were too expensive for me to pay for.”

After having four kidney transplants and racking up more than $40,000 in debt to try and pay for her medications, Mary knows that nothing in life is a given. Having Medicare coverage of immunosuppressive medications, “would make it easier for patients to consider transplant, get people on the waiting list, and averting dialysis.”

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John Cabaluna

“If Congress guaranteed Medicare coverage of immunosuppressive medications, no matter your social status, you’d be covered!”

While kidney transplant patients have a lot to worry about, John reminds us how important it is to not lose hope. Congress, it’s time to ensure kidney transplant patients have guaranteed access to life-saving immunosuppressive medications, regardless of their social status.

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The Kidney Boyz

“To have the medications taken care of would give me more time to focus on the actual health of my kidney instead of my bank account.”

John and Ryan both received kidney transplants when they were young and have been taking anti-rejection medications ever since. If they have to take these meds for the rest of their life, why does Medicare only cover them for three months?

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